Left Hand Valley Courier - All Local, All The Time

By Vicky Dorvee

Update - Mila’s Miracle Foundation


September 3, 2017

We apologize for an incorrect link which was included in the earlier article regarding Mila’s Miracle Foundation. For information on fundraising events supporting Mila’s foundation, please visit http://www.StopBatten.org/events.

Earlier we had reported Mila’s three-year-old brother, Azlan, might also have the gene combination that results in Batten Disease. We are pleased to report tests concluded Azlan does not have Batten Disease. However, it is true that siblings of children with Batten have a 25 percent chance of also having the disease.

Additionally, we’ve learned that the Boulder law firm, Conscious Family Law (ConsciousFamilyFirm.com) is donating five percent of their August profits to Mila’s Miracle Foundation (StopBatten.org).

Julia Vitarello said, “It just shows how local restaurants, law firms, musicians, etc., have stepped up to help this story that started in our backyard, but the lasting effects could help hundreds of diseases that affect the entire world.”


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