Left Hand Valley Courier - All Local, All The Time

Busting Batten Disease

 

August 24, 2017

JULIE AFFLERBAUGH

Photo by Julie Afflerbaugh Mila’s family from left are Alek Makovec, Mila, Azlan, and Julia Vitarello.

For the average cost of a home in Boulder, rare diseases affecting hundreds of children could be curtailed or eradicated. Six-year-old Mila Makovec was diagnosed in late 2016 with one of these diseases and her family is looking to our community to raise $1M to help children in the same unfathomable situation.

Diagnosing Mila’s illness was a journey unto itself. What doctors discovered years after worsening symptoms appeared, was that Mila (pronounced Mee’-la) has Batten Disease, a fatal genetic disorder that rears its head unexpectedly between ages three to five. Everything appears nor...



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