One family's battle against Batten disease

Mila Makovec was an outgoing toddler who liked to sing, climb, hike and run. She enjoyed playing in the snow and watching Elmo on TV. But that all changed in late 2016, when her symptoms for a rare neurodegenerative disorder known as Batten disease became acute, and doctors at Children’s Hospital were finally able to make the diagnosis of a disease that affects only about one in every 100,000 peop...