All Local, All The Time
All Local, All The Time
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It was winter when the Makovec family uprooted their lives in Colorado to begin an experimental genetic treatment for seven-year old Mila in Boston. All efforts were focused on Mila at that critical juncture as she battled against Batten CLN7 disease, a fatal neurodegenerative disease which has been robbing the previously normal little girl of her of her sight, mobility, cognitive and speech abilities. The diagnosis of Batten Disease a year earlier radically changed the family's life and set...
